FILOTIMO KIDS CLUB
We are thrilled to introduce FILOTIMO KIDS!
With a focus on educating our future leaders and ambassadors and of course, celebrating our young brave warriors, FILOTIMO KIDS is also a platform for families of children who are fighting cancer, to talk to our amazing Rangers, Navigators and Professional Experts to gain insight and support into the journey ahead.
Our goal is to increase awareness and raise funds for those affected by childhood cancer. The Filotimo Kids Club encourages everyone to Go Gold during September in honour and in memory of kids with cancer!
“DOING WHAT WE DO IN THE SPIRIT OF FILOTIMO”
Childhood Cancer Awareness Month (CCAM) is recognized every September by childhood cancer organizations around the world... a time to recognize the children and families affected by childhood cancers and to emphasize the importance of supporting research on these devastating conditions.
It is symbolised by a gold ribbon, worn to commemorate the event. Why is gold used for childhood cancer? The colour gold symbolizes how precious children are and the resiliency of childhood cancer heroes. Unlike other awareness ribbons that symbolize one specific disease, the childhood cancer ribbon stands for dozens of childhood cancer types.
With a goal to increase awareness and raise funds for those affected by childhood cancer, the Filotimo Kids Club encourages everyone to Go Gold during September in honour and in memory of kids with cancer!
In September, and throughout the year, we honour the children currently battling cancer, the families who love them, the clinicians and other caregivers treating them, the survivors of childhood cancer, the children who lost their lives to childhood cancer, and the researchers working to conquer childhood cancer.
Public awareness of the warning signs of childhood cancer is vital. Currently, between 800 to a
1 000 SA children are diagnosed with cancer annually. However, it’s estimated that half of the children with cancer in South Africa, are never diagnosed.
We are proud to be associated with the Cancer Association of South Africa [CANSA] and together our aim is to raise awareness about Childhood Cancer, its warning signs and symptoms and to educate our youth about Cancer as early detection is absolute key for treatment outcomes!
CANSA’s Childhood Cancer Awareness Programme is aimed at educating the public on the early warning signs.
Help us to continue to do what we do... in the spirit of Filotimo by donating to our cause 🎗so we can support our children’s partnered institutions and our Filotimo Kids Club.
“Doing what we do... in the spirit of Filotimo”
WE ARE PROUD TO BE ASSOCIATED WITH CHOC
[CHILDHOOD CANCER FOUNDATION
OF SOUTH AFRICA]
They are a non-profit organisation that advocates for the health and well-being of children and teenagers diagnosed with cancer or life-threatening blood disorders and their families.
The passionate and dedicated staff and volunteers of CHOC aim to save lives through early detection and comprehensive support programmes for the families affected by cancer.
BRINGING JOY TO OUR LITTLE WARRIORS
CHILDHOOD CANCER AWARENESS INFO
We are proud to be associated with The Cancer Association of South Africa [CANSA] and together our aim is to raise awareness about Childhood Cancer, its warning signs and symptoms and to educate our youth about Cancer as early detection is absolute key for treatment outcomes!
WE'RE CRAZY ABOUT KIDS!
Hi! My name is Bianca, mommy to Liané. Liané was diagnosed in December 2020 with Neuroblastoma. She was due to start chemotherapy, then she stopped breathing. They had to resussitate her causing major brain damage. She was never going to be able to see again. After the resussitation, she completed 4 rounds of intensive chemotherapy. The chemo she had completed shrunk the tumour A LOT, but it was still active and still there.
We had a discussion with the doctors and we were given 3 choices:
1. Intensive chemotherapy which might help, but will make her extremely sick.
2. Less invasive chemotherapy which will just keep the tumour under control and slow down the spread.
3. No treatment.
We went with option 2, knowing that this chemotherapy is not designed to "cure" but to give us just a little bit more time. Liané was scheduled to go for a MiBG scan in February 2021, but she was just too weak, so they cancelled it. Since her last round of intensive chemotherapy she completed 6 rounds of less invasive chemotherapy and she was strong enough to do the MiBG scan.
6 October 2021, we got to do the first part of the MiBG and then the second part the day after. I got to be with her while they do the scan. I asked the radiologist to explain to me what she is seeing on the scans if she can after the second day and she asked me quite a lot of questions regarding treatments, etc. She could not find ANY tumour in Liané's body. 12 October 2021 her doctors could confirm Liané was in remission and no active tumour can be seen or found in her body.
LIANÉ HAS BEAT CANCER!!! 🎗️🎗️
What do we do now?
Liané has to go for blood tests to keep an eye on her for the next 6 months. She also has to do urine tests and she might do follow up scans to just keep an eye on it. Liané still needs to receive physio to improve her strength and movement. She still has the feeding tube. Her eye sight is improving and is reacting to lightness and darkness.
We thank everyone who has supported us in the journey so far! We still have some work to do and we are surely getting there. Anyone wishing to help with blood tests, physio, scans, appointment costs or daily needs with regards to her spesialised feeding, etc can do so by clicking the link below.